WE ARE ACTUALLY HOME!! Didn't want to update the blog until I had a few good days behind me. We left on Thursday afternoon and we went to the Halloween store so I could get my halloween costume (see the picture) I'm going to be a black cat!! I am so happy to be home,playing with my brothers, sleeping in my own bed. I go back to the hospital on Wednesday the 14th, just for a check-up( we are hoping everything will look good.) I still have my oxygen all the time and have to eat a low-fat diet until Thanksgiving. But, I'm okay with that just as long as I can be home. We want to thank everyone that has supported us through this. You have helped more than words can express! WE LOVE YOU !! Princess Calli

Today, Wednesday October 7th they pulled my chest tube out!! I hope all goes well. They will check my x-ray in the morning and hopefully there is no fluid building up.We are just watching it now, so we don't know exactly when we will be coming home. HOPEFULLY THIS WEEK! I still go to the playroom, go on walks and Cache comes and plays with me.

Okay, we have learned that you don't think you're going home until you are actually in the car entering your driveway. Saturday morning my chest tube started draining again (about 200 cc and then some)So, we are still in the hospital, room #3089 100 Mario Cappechi Drive, S.L.C, Utah. We now are trying a different medication to hopefully dry up all this drainage. Monday we didn't have any drainage but, we have to wait and see. Chest x-ray's in the morning might tell us more (simply just waiting to see what happens.) We have learned to be patient and just wait and see what tomarrow brings. Thanks for sending the positive encouragement!!

My chest tube hasn't been draining, they think it might be stopped. YEAH!! They keep checking when I go down to chest x-rays and it still looks okay. If tomarrow morning it looks okay they will take out the chest tube. We are hoping and praying everything goes well and maybe I can come home on Sunday or Monday!! I hate taking my medications but, when they tell me it will get me better and I will be able to go home sooner ,I swallow them right down.
I painted a birdhouse yesterday and I can't wait to go home and hang it from our tree. Thank You everyone for the encouraging comments, they really help my mom. We are very grateful for everyone willing to help lighten our load.

On Sunday hundreds of Harley-Davidson bikers rode to the hospital and parked outside, some of them came in and brought toys to all the kids. I got my picture taken with one and they gave me princess shoes ( I love them!) On Sunday my chest tube drained about 30 cc but, through the night it didn't at all. The doctors say that we will have to see how Monday and Monday night go to determine if I can start eating my low-fat diet again ( every day I ask to eat and I am hungry,even though I am being feed through my IV) When I do start to eat, they say we will have to monitor if the fluid starts draining again. If it starts draining again we will have to go to the alternative method. Please pray for me because we don't want to do the alternative method.
I'm trying to be happy and keep my mind busy. I do crafts, play with toys ,draw,go for lots of walks in my wheelchair. Thank you, thank you for everyone's prayers.

Today Calli had a pretty good day, except she keeps asking for food. She hasn't eaten for two days. She is being fed through a IV. She liked the card the Primary made for her,we hung it on her wall. ( Thank You for sending happy things her way) We are trying to keep her busy so she doesn't have to think about food. We hope this is getting better but we can't be sure for another day or so. Keep praying for Calli. Thank You

Calli went back into Intensive Care this morning. They inserted another chest tube and drained 300 cc and had to put in a PICC line (Central Line Care). A PICC line is a long flexible tube that is inserted into a large vein in your arm and then threaded into a large vein above your heart. They inserted the PICC line so they can feed her through it(when you eat the fat in your food produces this fluid called "chyle" that keeps accumulating in her chest so, hopefully this will dry up this fluid instead of using diuretics. We pray that this works because we do not want to go to the alternative step.
We can't express enough how much we appreciate everyone's concern, prayers and fasting. Thanks for your encouraging comments. Love the Clark family